This Dementia Action Week, raising awareness so that people can receive a timely diagnosis and access vital support is so important. As a charity specialising in young onset dementia support, we see first-hand the difference support services make to the lives of families affected by dementia.
We want to thank Rosie Buckley, a freelance writer, who has produced this article for us to share with you all.
This year, Dementia Action/Awareness Week is taking place between the 19th and 25th of May, and it is led by the Alzheimer’s Society. This year, they’re focusing on the importance of an accurate and timely diagnosis for those who have dementia.
What is dementia?
Dementia is an umbrella term and not a single disease; it covers a range of progressive conditions that affect the brain. Symptoms can include memory loss, changes in mood and behaviour, cognitive difficulty, and trouble with communication and language. Alzheimer’s disease is the most common form, but there are many other types.
Find out more about young onset dementiaImportance of Dementia Awareness Week
The theme for this year’s dementia awareness week focuses on dementia diagnosis and how important it is to get one. A survey from Alzhiemer’s Society found that 56% of people are putting off seeking a diagnosis for dementia for up to a year or more. The survey also found that 62% felt that getting a dementia diagnosis would mean their ‘life is over’.
Dementia is named the most feared health condition in the UK, but an early and accurate diagnosis is very beneficial. Having a diagnosis means you can get access to the care and support you need for your specific type of dementia. Individuals with dementia may also be able to access financial benefits to help them. Getting a diagnosis early on means you can find out what you’re eligible for and plan ahead for the future.
Raising awareness about the importance of getting an early diagnosis means people can get the help they need.
Educating People about Dementia
If people are aware of what dementia is, then it also means they can go and seek a diagnosis early on if they develop symptoms. For example, did you know that dementia can also affect young people, sometimes as early as people in their 30s? If a person is diagnosed with dementia before they turn 65 years old, then this is known as young onset dementia. Many people don’t know this, but it’s important they do so they can seek help if they show symptoms. There’s also a lack of awareness among GPs, and many think dementia only develops as you get older.
If people can have a better understanding of dementia, then we can create a more supportive society.
Practical Ways to Offer Support
Yes dementia awareness week this year is about the importance of a diagnosis, but it’s also about offering your comfort. If you know someone with dementia, then here are some things you can do:
- Educate yourself: This is a great place to start. If you can understand your loved one’s condition, then this can help you give them the right support.
- Create a safe environment: Calming music, gentle lighting and familiar objects can create a sense of stability and comfort for someone with dementia.
- Respite care: If someone you know is caring for a person with dementia full-time, then they may need a break. Allowing a carer to take some time out from their duties is good for their wellbeing and can help them refresh. Ask if there’s anything you can help with, like chores around the house or running errands.
Meaningful Activities
Engaging in activities with someone who has dementia is a great idea as it provides stimulation and joy. Here are some examples of what you can do:
- Arts and crafts: Crafts can encourage creativity. You could try doing an adult colouring book together or painting something meaningful.
- Gardening: Activities like planting flowers and weeding is great exercise and a fun hobby.
- Reading together: Reading to someone with dementia can create conversation and memory retention.
Between May 19th and 25th, there’s so much you can do to get involved! Look out for community events and consider raising awareness by creating conversations and posting on social media. If we work together, we can create a supportive environment for those with dementia.
Rosie Buckley, Freelance Writer & Blogger