Angela Project - Improving Support and Service Use Survey

A NATIONAL SURVEY FOR YOUNG ONSET DEMENTIA 
 
We are pleased to support a national survey for young onset dementia, details of which are outlined below.  We would be pleased if you could take the time to complete the survey.
 
Research Study - The Angela Project: Improving diagnosis and post-diagnostic support for younger people with dementia, families and supporters. 
 
Please join us to improve services and support for younger people living with dementia, family members and supporters. We are from University College London and the Universities of Bradford, Northampton and Surrey and we are involved in a research study called the Angela Project. The Angela Project is dedicated to Angela, a lady with young onset dementia who went undiagnosed for 3 years before her symptoms were recognised. 
 
Currently, many younger people living with dementia and families receive limited services and support in the UK throughout the time they live with dementia. We want to understand how to improve support for younger people with dementia, families and supporters. From this work, we will produce information and guidance on best practice in diagnosis and post diagnostic support, which can inform others who seek to develop effective services. 
 
If you live with a diagnosis of dementia, which was received before you reached the age of 65, or if you are related to, or supporting someone with a diagnosis of young onset dementia, we are inviting you to complete a survey.  If you are interested in taking part can you please contact:
 
Shani McCoy, Research Assistant
The Berkshire Memory and Cognition Research Centre
Harry Pitt Building
Earley Gate
University of Reading
Reading
Berkshire RG6 7BE
 
Tel: 01183785700 ext 5702;
Mobile: 07899 063478;
 
We would welcome enquiries if you would like to find out more about the research. Thank you!